I'm holding an event to raise funds for The Children's Hospital at Westmead!
We are raising money for the Cystic Fibrosis Clinic at the Westmead Children’s Hospital. The Cystic Fibrosis Clinic helps keep our beautiful daughter Solin and all the other children living with cystic fibrosis healthy and happy.
The Doctors , Nurses , Dietitians ,Physio’s and Pharmacy staff go above and beyond to look after our children every single day and nothing is ever too hard . And now it’s time for us to give back and say thank you!! Below is a little bit more information about cystic fibrosis.
Cystic fibrosis (CF) is a life-limiting genetic disorder. It impacts the whole body, but mainly affects the respiratory system (lungs), the digestive system (the pancreas and sometimes the liver) and the reproductive system.
When a person has CF, their mucus is very thick and sticky. It is difficult for people with CF to clear this mucus from their lungs. It clogs the tiny air passages and traps bacteria. This causes recurring infections and blockages, which can cause irreversible lung damage over time.
Thick mucus in the digestive system can also affect the transfer of digestive enzymes from the pancreas to the small intestine. This leads to difficulty with digesting fats and absorbing some nutrients. This means that people with CF can have problems with nutrition and need to consume a diet high in kilojoules, fats and salts.
CF is the most common life limiting genetic disorder affecting Australians today for which there is no cure.
Treatment for CF can be intensive and time consuming. At present, there is no cure for CF. Treatment aims to slow progression of the condition and can include:
- chest physiotherapy
- medications that help correct the changes to the body’s cystic fibrosis transmembrane conductance regulator (CFTR) protein, which is what causes CF
- inhalations via a compressed air pump and nebuliser
- enzyme replacement capsules with meals and snacks
- a well balanced diet high in protein, fat and kilojoules
- percutaneous endoscopic gastrostomy (PEG) – a procedure in which a flexible feeding tube is placed through the abdominal wall and into the stomach
- supplementary vitamins
- salt supplements
- regular exercise.
Regular attendance at a major CF clinic is beneficial and recommended.
Thank you for your donation!!
That’s why We have chosen to raise much needed funds for The Children's Hospital at Westmead. Thank you for your support!